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The project

As an infant is born, so is the relationship between the infant and his/her parents (especially mom). The baby is born together with the dyad.

This relationship is the primary one in the infant’s life, and vital both for the survival of the infant and the wellbeing of the mother. It is also essential for the continual development of the connection between parent and infant.

However, when perinatal events modify the health of the infant, this vital relationship is in danger. Our role, as the professionals supporting the dyad through the first stages of development, is to help the dyad to get there, ‘there’ being the potential of the infant development and parental belief in their child, thereby increasing the possibilities of the quality of life for the child and harmony for the family.

BORNTOGETTHERE aims to support and empower families of infants at neurodevelopmental risk, from being born together to being born to get “there”, to the full potential of the infant development and family harmony.

Project structure

BORNTOGETTHERE is centred on the clinical implementation of context-specific, early detection (ED), early surveillance (ES) and early intervention (EI) for infants at high risk of CP in multiple sites including Europe, associated low and middle income countries, and hard to reach populations.

Partners

BORNTOGETTHERE Consortium is composed of 9 partners, 6 coming from 3 EU Member States (Italy, Denmark, Netherlands), 2 from 2 associated countries (Georgia and Sri Lanka) and one from Australia.

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Ethics Advisory Board

Ethics Advisory Board (Data and Safety Monitoring Board) is composed by medical physician scientist or clinician from each of the involved countries with expertise in the healthcare quality improvement and clinical trials monitoring, at least one biostatistician knowledgeable about statistical methods for clinical healthcare outcomes and sequential analysis of clinical data; one healthcare economist, and an external independent medical ethics expert not employed by any of the beneficiary organizations, and a one non-scientist representative who will help on bringing the perspectives of the population under study e.g. at least one member of a parent organization. Thee Board is chaired by Domenico Romeo, Policlinico Gemelli

Executive Board

The Executive Board is the ultimate decision-making body of the consortium. It is composed of one representative from each Party and chaired by Andrea Guzzetta, Università di Pisa

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Andrea
Guzzetta

Università
di Pisa

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Alessandra
Silvestri

Hubstract
 

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Giovanni
Cioni

Fondazione
Stella Maris

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Giuseppina
Sgandurra

Università 
di Pisa

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Jens Bo
Nielsen

UCPH
 

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Gopi
Kitsanamy

Cerebral Palsy Lanka
Foundation

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Arend F.
Bos

UMCG
 

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Nana 
Tatishvili

David Tvildiani
Medical Universit

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Ros
Boyd

The University of
Queensland

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Giovanni 
d'Errico

Toscana Life
Science 

Innovation Management Board

The Innovation Management Board (IMB) is created with the goal to provide support to all the parties in tackling any Intellectual Property Rights generated throughout the project duration and therefore help the consortium to better manage the knowledge and results produced, thus fostering technology transfer and innovation. The IMB supervises the implementation and correct execution of the provisions concerning the management of the IPR, The board is composed by one representative for each party and chaired by Dr. Andrea Frosini, Toscana Life Sciences

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Andrea
Frosini

Toscana Life 
Science

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Pamela
Federighi

Fondazione
Stella Maris

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Arend F. 
Bos

UMCG
 

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Anina Ritterband-
Rosenbaum

UCPH
 

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Ros
Boyd

The University of 
Queensland

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Maria Grazia
Carrai

Hubstract
 

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Giuseppina Sgandurra

Università
di Pisa

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Sofia
Tatishvili

David TvildianiMedical Universit

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Gopi
Kitsanamy

Cerebral Palsy Lanka
Foundation 

Dissemination Outcomes

Publications 

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